BMT Day #0
I slept good last night. I still woke too early. Who cares! No one sleeps in hospitals. Today is the big day. First, I get another round of TBI. Then I wait for the cord cells. After my trip to radiation, I gladly come back to my older room, 6344. More remove to sprawl out. That’s important considering the time I will be here. Comfort helps. Then cord cells have arrived. The first bag of cord cells gets thawed and to me at about 10:15 A. M., as I am eating breakfast. The second one came by around 12:30 P.M. Both bags together do not add up to even a small bag of platelets, Yet, these are the cells that hopefully engraft and start growing new cells. One pack of the stem cells is French; the other British. One is Type A+, which I currently have, the other Type AB. It will be months before I know what my blood type is once again.
Diarrhea, an unpleasant topic. It finally happened, one bout so far, but a messy one. These nurses do a great job putting you at ease as they clean you up and help you get dressed. Nothing since this morning.
I want to go for a walk, but am afraid to because of my bowels. I don’t want any accidents away from my room. I didn’t walk yesterday because of the TBI, schedules and tiredness. If my gut settles, maybe I’ll try later.
BMT Day #1
Early wakeup at 3:30 A.M., but I slept a good five hours before that. I hate diarrhea. I hate hemorrhoids. Today has been one of those kind of days. Because of all the fluids I get intravenously, I am limited to 1200cc per day by mouth. That’s really hard when the mouth feels like it’s coated in cotton. That’s the chemo and radiation and some of the drugs. Dry foods are like eating a moisture-soaking sponge. Foods have no taste. Even some of the hospital food that tastes good normally tastes like nothing.
I walked once this morning between bathroom excursions. If my gut settles down, maybe I’ll try for another. Sitting in a chair or bed gets tiresome real fast.
Each day my medicines change. Drop this, add that, replace this with that; toss something in just for good measure. I get medicines to protect everything. Let’s hope the stem cells start fixing. Stem cells are strange things. They are supposed to know how to get into the bone marrow and start making the right kind of cells. The stuff that was in there sure didn’t know what they were doing.
BMT Day #2
No sleep. Maybe an hour broken sleep between 9:30 P.M. and 4:30 A.M. Too much diarrhea; not enough sleep. Add a puking episode this morning to the fun. Last night was weird too. The sheets hurt the skin on my legs. If I turned on my side, the skin that touched hurt. Skin sensitivity from chemo and radiation could have a lot to do with this is what the doctors say. They gave me some cream that will numb the skin so I can sleep.
I tried walking a couple of times today. I didn’t get very far – totally exhausted. I’m too tired to wash up, but some time today, I have to do that no matter how bad I feel. I do wash about after each bowel movement, but that’s only part of me. I am having a hard time with the lack of energy. I’m surprised I even opened up the laptop. Getting it out of the case was work. And it’s only 2:30 P.M.
Tired, but the day improved. Less diarrhea and nausea and I walked a bit farther. Hope to sleep tonight.
BMT Day #3
I slept okay last night, about 5 hour in a couple of shifts. The skin cream worked well. Diarrhea got worse this morning but seemed to settle down this afternoon. I feel like shit. That’s the best way to put it.
BMT Day #4
Finally slept, now feverish shitty felling.
BMT Day #5
Pretty much like BMT Days #4 and #5
BMT Day #6
Ditto, but did you know you can crap in your pants while asleep? Gross. And this is how I will end this post.